Comparative Canadian and United States Autism: A Narrative Analysis
Main Article Content
Keywords
Autism, Policy, Narrative Analysis
Abstract
This article examines autism policy narratives inCanadaand theUnited States. In both nations, meta-narratives emerged, establishing federal autism policy. Whereas the stories associated with these meta-narratives shared starting points, the stories unfolded in nationally distinct ways.
References
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Baker, D.L. (2008). Issue Definition in Rights-Based Policy Focused on the Experiences of Individuals with Disabilities: An examination of Canadian Parliamentary Discourse. Disability & Society, 23(6) 571-583.
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Fischer, F. (2003). Reframing Public Policy: Discursive Politics and Deliberative Practices. New York: Oxford University Press.
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Kirby, D. (2006). Evidence of Harm: Mercury in Vaccines and the Autism Epidemic. New York: St. Martin's Press.
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Lynch, P. (2006). Canada Votes 2006: Riding Talk. Retrieved from http://www.cbc.ca/canadavotes/ridingtalk/2005/11/019.html
Miller, D. (2009). Best Practices in School Neuropsychology: Guidelines for Effective Practice, Assessment, and Evidence-Based Intervention, Hoboken, New Jersey: John Wiley.
Morrow, E. M., Yoo, S.-Y., Flavell, S. W., Kim, T.-K., Lin, Y., Hill, R. S., . . .Walsh, C. A. (2008). Identifying Autism Loci and Genes by Tracing Recent Shared Ancestry. Science, 328(5886), 218-223.
Roe, E. (1994). Narrative Policy Analysis: Theory and Practice. Durham, NC: Duke University Press.
Scott, A. (2006). Canada Votes 2006: Riding Talk. Retrieved from http://www.cbc.ca/canadavotes/ridingtalk/2005/11/019.html
Senate Committee on Health, Education, Labor and Pensions. (2006). Report to AccompanyS.843 Combating Autism Act of 2005. Retrieved from http://www.gpo.gov/fdsys/pkg/CRPT-109srpt318/html/CRPT-109srpt318.htm.
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Shapiro, Joseph (2011). No Pity: People with Disabilities Forging a New Civil Rights Movement. New York: Random House.
Smith, R. (2004). "Is Autism Prevention Government Policy?" Retrieved from http://www.sentex.net/~nexus23/tap_red.html
Toronto Partnership for Autism Services (TPAS) (2008). Welcome to Toronto Partnership for Autism Services (TPAS)--Intensive Behavior Intervention (IBI). Retrieved from http://www.autism.net/content/view/97/260/
Twachtman-Cullen, D. (2006). Suzanne Wright Takes on Autism. Retrieved from Autism
Spectrum Quarterly website, http://www.asquarterly.com/articles/asq9excerpt.html
Twyman, K. A., Maxim, R. A., Leet, T. L., Ultmann, M. H. (2009). Parents’ Developmental Concerns and Age Variance at Diagnosis of Children with Autism Spectrum Disorder. Research in Autism Spectrum Disorders, 3(2) 489-495.
Volkmar, F. R., C. Lord, A. Bailey, R. Schultz, & A. Klin. (2004). Autism and Pervasive Developmental Disorders. Journal of Child Psychology and Psychiatry 45(1) 135-170.
White House. (2006). Fact Sheet: Combating Autism Act of 2006. Retrieved from http://www.whitehouse.gov/news/releases/2006/12/print/20061219-3.html
Autism Society of America. (2004). ASA Statement on May 2004 IOM Report on Vaccines andAutism. (2004). Retrieved from http://www.autism-society.org/site/PageSErver? pagename=mmrvaccine
Autism Speaks (2010). Policy Statement on Mercury and Autism. Retrieved from http://www.autismspeaks.org/press/mercury_autism_policy_statement.php.
Baker, D.L., & Stokes, S. (2007). Brain Politics: Aspects of Administration in the Comparative Issue Definition of Autism-Related Policy. Public Administration Review, 67(4), 757-767.
Baker, D.L. (2008). Issue Definition in Rights-Based Policy Focused on the Experiences of Individuals with Disabilities: An examination of Canadian Parliamentary Discourse. Disability & Society, 23(6) 571-583.
Barton, D. (2006, December 6). Statement on S. 843 as Amended, the "Combating Autism Act." Retrieved from http://www.autismspeaks.org/press/statement_on_combating_autism?act.php.
Burton, D. (2008). Statement in Support of Combating Autism Act. Retrieved from http://www.house.gov/burton/Issues/autism/support_of_combating_autism_act.htm.
Bridgman, T., & Barry, D. (2002). Regulation is Evil: An Application of Narrative Policy Analysis in Regulatory Debate in New Zealand. Policy Sciences, 35, 141-161.
Canada Votes 2006: Riding Talk (2006). Retrieved from http://www.cbc.ca/canadavotes/ridingtaking/2005/11/019.htm.
Canada Health Care Act Annual Report 2008-2009. Retrieved from http://www.hc-sc.gc.ca/hcs-sss/pubs/cha-lcs/2009-cha-lcs-ar-ra/index-eng.php
Centers for Disease Control (2008). Retrieved from http://www.cdc.gov/ncbddd/autism/index.htm.
Commission on the Future of Health Care in Canada. (2002). Medically Necessary: Who Decides? What is it? Retrieved from http://www.hcsc.gc.ca/english/ pdf/ romanow/pdfs/Medically_Nec_eng.pdf
“Cure Autism Now and Autism Speaks Praise the Swift Approval of the Combating Autism Act by United States Senate,” December 7, 2006. Retrieved from http://www.autismspeaks.org/press/senate_combating_autism_act_php.
Enzi, M. (2007, September). Executive Summary of the Report of the Ranking Member on Alleged Misconduct by Government Agencies and Private Entities Related to Thimerosol in Childhood Vaccines. Retrieved from http://help.senate.gov/Min_press/autism.pdf.
F.E.A.T. BC. (2010). History of FEAT. Retrieved from http://www.featbc.org/history_of_feat/
Fischer, F. (2003). Reframing Public Policy: Discursive Politics and Deliberative Practices. New York: Oxford University Press.
Health Canada (2006). Federal Autism Initiatives. Retrieved from http://www.hc-sc.gc.ca/ahc-asc/media/nr-cp/-2006/2006_111-eng.php.
Imus, D. (2006, December 18). Letter to the Editor. Newsweek. Retrieved from http://newsweek.com/id/44148/page/8
Kaplan, T. (1986). The Narrative Structure of Policy Analysis. Journal of Policy Analysis and Management , 5(4), 761-778.
Kirby, D. (2006). Evidence of Harm: Mercury in Vaccines and the Autism Epidemic. New York: St. Martin's Press.
The Learning Disabilities Association of Canada. (2008). LD and the Law. Retrieved from http://www.Idac-taac.ca/LDandtheLaw/casesAuton_Law-e.asp
The Lovaas Institute (2010). Retrieved from http://www.lovaas.com/research.php
Lynch, P. (2006). Canada Votes 2006: Riding Talk. Retrieved from http://www.cbc.ca/canadavotes/ridingtalk/2005/11/019.html
Miller, D. (2009). Best Practices in School Neuropsychology: Guidelines for Effective Practice, Assessment, and Evidence-Based Intervention, Hoboken, New Jersey: John Wiley.
Morrow, E. M., Yoo, S.-Y., Flavell, S. W., Kim, T.-K., Lin, Y., Hill, R. S., . . .Walsh, C. A. (2008). Identifying Autism Loci and Genes by Tracing Recent Shared Ancestry. Science, 328(5886), 218-223.
Roe, E. (1994). Narrative Policy Analysis: Theory and Practice. Durham, NC: Duke University Press.
Scott, A. (2006). Canada Votes 2006: Riding Talk. Retrieved from http://www.cbc.ca/canadavotes/ridingtalk/2005/11/019.html
Senate Committee on Health, Education, Labor and Pensions. (2006). Report to AccompanyS.843 Combating Autism Act of 2005. Retrieved from http://www.gpo.gov/fdsys/pkg/CRPT-109srpt318/html/CRPT-109srpt318.htm.
Senate Standing Committee on Social Affairs. (2007). Final Report on: The Enquiry on theFunding for the Treatment of Autism PAY NOW OR PAY LATER Autism Families in Crisis. Retrieved from http://www.parl.gc.ca/39/1/parl
Shapiro, Joseph (2011). No Pity: People with Disabilities Forging a New Civil Rights Movement. New York: Random House.
Smith, R. (2004). "Is Autism Prevention Government Policy?" Retrieved from http://www.sentex.net/~nexus23/tap_red.html
Toronto Partnership for Autism Services (TPAS) (2008). Welcome to Toronto Partnership for Autism Services (TPAS)--Intensive Behavior Intervention (IBI). Retrieved from http://www.autism.net/content/view/97/260/
Twachtman-Cullen, D. (2006). Suzanne Wright Takes on Autism. Retrieved from Autism
Spectrum Quarterly website, http://www.asquarterly.com/articles/asq9excerpt.html
Twyman, K. A., Maxim, R. A., Leet, T. L., Ultmann, M. H. (2009). Parents’ Developmental Concerns and Age Variance at Diagnosis of Children with Autism Spectrum Disorder. Research in Autism Spectrum Disorders, 3(2) 489-495.
Volkmar, F. R., C. Lord, A. Bailey, R. Schultz, & A. Klin. (2004). Autism and Pervasive Developmental Disorders. Journal of Child Psychology and Psychiatry 45(1) 135-170.
White House. (2006). Fact Sheet: Combating Autism Act of 2006. Retrieved from http://www.whitehouse.gov/news/releases/2006/12/print/20061219-3.html
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Published
Oct 13, 2014
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Author Biographies
Dana Lee Baker, Associate Professor, Political Science; Program Leader, Departments of Criminal Justice, Sociology and the School of Politics, Philosophy and Public Affairs, Washington State University
Dana Lee Baker is an Associate Professor in Political Science and the Program Leader for the Departments of Criminal Justice, Sociology and theSchool of Politics, Philosophy and Public Affairs atWashington State University. Dr. Baker earned her Ph.D. in Public Policy from the Lyndon Baines Johnson School of Public Affairs at theUniversity ofTexas atAustin.
Trudy Steuernagel, Professor, Kent State University
Trudy Steuernagel was a political science professor at Kent State University. Dr. Steuernagel passed away in February 2009. She is deeply missed and fondly remembered.