An Ethnographic Study on Religion, Spirituality, and Maternal Influence on Sibling Relationships in a Muslim Family with a Child with Autism
Main Article Content
Keywords
Autism, Sibling Relationships, Religion Beliefs and Practice
Abstract
This ethnographic study examined maternal influence on sibling relationships when one child has autism. The mother’s and typically developing son’s understanding of having a family member with autism was shaped by and imbued in their religion. The family’s religion and daily practices helped support the child with autism.
References
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Sage, K., & Jegatheesan, B. (2010). Parents socializing sibling relationships in European American and Asian American families of children with autism in the United States. International Journal of Early Childhood Special Education, 2(3), 193-213.
Sarwar, G. (2000). Book of Salah. Nottingham: Pyramid Press.
Shaked, M. (2005). The social trajectory of illness: Autism in the ultraorthodox community in Israel. Social Science and Medicine, 61, 2190-2200.
Stoneman, Z. (2005). Siblings of children with disabilities: Research themes. Mental
Retardation, 43, 339-50.
Strauss, A. & Corbin, J. (1990). Basics of qualitative research: Grounded theory procedures and techniques. California: Sage Publications.
Yamey, G., & Greenwood, R. (2004). Religious views of the ‘medical’ rehabilitation model: A pilot qualitative study. Disability and Rehabilitation, 26(8), 455-462.
Bazna, M., & Hatab, T. (2005). Disability in the Qur’an: The Islamic alternative to defining, viewing, and relating to disability. Journal of Religion, Disability and Health, 9(1), 5-27.
Braun, K. (2008). Beliefs and experiences of disability in young children who have siblings with autism: Pictorial and narrative representations (Unpublished master’s thesis). University of Washington.
Benderix, Y. & Sivberg, B. (2007). Siblings’ experiences of having or brother or sister with autism and mental retardation: A case study of 14 siblings from five families. Journal of Pediatric Nursing, 22, 410-418.
Benzahra, S. A. (2002). Representations of the disabled in Arab/Islamic culture and literature from North Africa and the Middle East. (Unpublished Ph.D. dissertation). University of Minnesota.
Beshir, E., & Beshir, M. R. (2004). Parenting skills based on the Qur’an and Sunnah. Beltsville, MD: Amana.
Charmaz, K. (2002). Qualitative interviewing and grounded theory analysis. In J. Gubrium & J. Holstein (Eds.), Handbook of interview research (pp. 675-694). CA: Sage.
Cuskelly, M., & Gunn, P. (1993). Maternal reports of behavior of siblings of children with Down syndrome. American Journal on Mental Retardation, 97, 521-9.
Goin-Kochel, R. P., & Myers, B. J. (2005). Congenital versus regressive onset of autism spectrum disorders: Parents’ beliefs about causes.. Focus on Autism and Developmental Disorders 20:169-179.
Gaad, E. (2001). Educating children with Down’s syndrome in the United Arab Emirates. British Journal of Special Education, 28(4), 195-203.
Glaser, B., & Strauss, A. (1967). The discovery of grounded theory: Strategies for qualitative research. New York: Hawthorne.
Gray, D. E. (1995). Lay conceptions of autism: Parents’ explanatory models. Medical Anthropology, 16, 99-118.
Hutton, A. M., & Caron, S. L. 2005. Experiences of families with children with autism in rural New England. Focus on Autism and Other Developmental Disabilities 20: 180-189.
Jegatheesan, B. (2005). Ways of being in home and community: Language socialization of children with autism in multilingual South Asian immigrant families. (Unpublished doctoral dissertation). University of Illinois at Urbana-Champaign.
Jegatheesan, B. (2009). Muslim Children with Autism Learn to Pray. In Shweder, R. A., Bidell, T., Dailey, A., Dixon, S., Miller, P. J., & Modell, J (Eds.). The Child: An Encyclopedic Companion. Chicago: University of Chicago Press.
Jegatheesan, B., Miller, P. J., & Fowler, S. (2010). Autism from a religious perspective: A study of parental beliefs in South Asian Muslim immigrant families. Focus on Autism and Other Developmental Disabilities, 25(2), 98-109
Joshi, K. Y. (2006). New roots in America’s sacred ground: Religion, race and ethnicity in Indian America. NJ: Rutgers University Press.
Lamorey, S. (2002). The effects of culture on special education services: Evil eyes, prayer meetings, and IEPs. Teaching Exceptional Children, 34(5), 67-71.
Mastrilli, T., & Sardo-Brown, D. (2002). Pre-service teachers' knowledge about Islam: A snapshot post September 11, 2001. Journal of Instructional Psychology, 29(3), 156-161.
Miles, C. (1996). Bilingual children in special education: Acquisition of language and culture by British Pakistani children attending a school for pupils with severe learning difficulties. (Unpublished master’s thesis). University of Birmingham, England.
Moore, L. (2004). Learning languages by heart: Second language socialization in a Fulbe community (Maroua, Cameroon). (Ph.D. dissertation). University of California, Los Angeles.
Morad, M., Nasri, Y., & Merrick, J. (2001). Islam and the person with intellectual disability. Journal of Religion, Disability and Health, 5(2), 65-71
Reinhart, A. K. (2003). On the ‘Introduction to Islam.’ In B.M. Wheeler (Ed.), Teaching Islam (pp. 22-45). New York: Oxford University Press.
Sage, K., & Jegatheesan, B. (2010). Perceptions of siblings with autism and relationships with them: European American and Asian American siblings draw and tell. Journal of Intellectual and Developmental Disabilities, 35(2) 92-104.
Sage, K., & Jegatheesan, B. (2010). Parents socializing sibling relationships in European American and Asian American families of children with autism in the United States. International Journal of Early Childhood Special Education, 2(3), 193-213.
Sarwar, G. (2000). Book of Salah. Nottingham: Pyramid Press.
Shaked, M. (2005). The social trajectory of illness: Autism in the ultraorthodox community in Israel. Social Science and Medicine, 61, 2190-2200.
Stoneman, Z. (2005). Siblings of children with disabilities: Research themes. Mental
Retardation, 43, 339-50.
Strauss, A. & Corbin, J. (1990). Basics of qualitative research: Grounded theory procedures and techniques. California: Sage Publications.
Yamey, G., & Greenwood, R. (2004). Religious views of the ‘medical’ rehabilitation model: A pilot qualitative study. Disability and Rehabilitation, 26(8), 455-462.