Securing Personal Input from Individuals Aging with Intellectual Disability: Do Differing Methodologies Produce Equivalent information?
Main Article Content
Keywords
aging, Intellectual disability, Likert-scales and Qualitative interviews
Abstract
Research is limited on whether differing methodologies for facilitating personal contributions from individuals aging with intellectual disability produce equivalent knowledge outcomes. Two matched purpose-developed tools examined five quality-of-life domains. Results showed substantial variance between qualitative interview responses and Likert-scale data, and indicate validity concerns for using either methodology in isolation.
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Stuart Wark, School of Rural Medicine University of New England Armidale, NSW
Stuart Wark (PhD) is the Second Year Clinical Coordinator with the School of Rural Medicine at the University of New England in Armidale, Australia. He has a two decade working history in the human services fields, and retains strong relationships with both rural and metropolitan community-based Non-Government Organisations (NGO) and health providers.
Miranda Cannon-Vanry, School of Rural Medicine University of New England Armidale, NSW
Miranda Cannon-Vanry is a PhD candidate with the School of Rural Medicine at the University of New England. She has a substantial work history within the fields of community-based health services, with a specific focus on the provision of appropriate support for individuals with lifelong intellectual disability.
Marie Knox, Centre for Disability Studies Sydney Medical School University of Sydney, Sydney, NSW and School of Rural Medicine University of New England Armidale, NSW
Marie Knox (PhD) is a Senior Research Fellow with the Centre for Disability Studies at the University of Sydney, and also holds adjunct positions with the Faculty of Health at Queensland University of Technology and with the School of Rural Medicine at the University of New England. Marie has an extensive background in research in the disability field in both Queensland and NSW. In particular, she has undertaken collaborative projects with human service organisations and with the service users of human services. She has a sound knowledge of and expertise in notions of inclusion and disability, and has skills in pragmatic approaches to developing and implementing organisational policy initiatives to reflect these notions.
Marie Parmenter, Centre for Disability Studies Sydney Medical School University of Sydney, Sydney, NSW
Marie Parmenter, until her retirement in 2009, was a Research Fellow at the Centre for Disability Studies, University of Sydney. Prior positions include Research Fellow in the Unit for Community Integration Studies at Macquarie University and District Officer with the New South Wales Department of Community Services. Marie continues part time research work in the areas of ageing and community inclusion. Volunteer work includes assisting people with intellectual disabilities who are involved with the criminal justice system.
Rafat Hussain, School of Rural Medicine University of New England Armidale, NSW and ANU Medical School & Research School of Population Health Centre for Ageing, Health and Wellbeing Australian National University, Canberra
Rafat Hussain (PhD) is an Associate Professor with the ANU Medical School Centre and the Centre for Research on Ageing, Health & Wellbeing, Research School of Population Health at the Australia National University. She also holds an adjunct professorial position with the School of Rural Medicine at the University of New England. Rafat's considerable professional and academic experience spans clinical medicine, public health, and health services management. She has specific expertise across a range of disciplinary areas, and both teaches and researches in public and population health, health services research, health promotion and research methodologies.
Matthew Janicki, Department of Disability and Human Development University of Illinois at Chicago, Chicago, USA and School of Rural Medicine University of New England Armidale, NSW, Australia
Matthew P. Janicki (PhD) is an Associate Research Professor at the Department of Disability and Human Development in the College of Applied Health Sciences at the University of Illinois at Chicago, and also holds an adjunct professorial position with the School of Rural Medicine at the University of New England. Currently, he is leading a study of specialised group homes designed for dementia related care of adult with intellectual disabilities, serves as the co-chair of the US National Task Group on Intellectual Disabilities and Dementia Practices, and is the founding editor of the Journal of Policy and Practice in Intellectual Disabilities.
Chez Leggatt-Cook, Uniting Care Community
Chez Leggatt-Cook (PhD) is the Principal Researcher at UnitingCare Community in Queensland, Australia. She has expertise in disability, homelessness, social exclusion, human and social services and non-profit organisations. Her work is driven by a central focus on social justice, with a specific interest in using research to inform and drive best practice within organisations.
Meaghan Edwards, Centre for Disability Studies Sydney Medical School University of Sydney, Sydney, NSW,
Meaghan Edwards is a PhD candidate at the Faculty of Medicine at the University of Sydney and a research fellow at the Centre for Disability Studies. In this role she conducts research and tutoring in the areas of person-centred planning for people with intellectual/developmental disability, quality of life, family quality of life, and inclusion. She also does work in the fields of community and social support.
Trevor Parmenter, Centre for Disability Studies Sydney Medical School University of Sydney, Sydney, NSW, Australia and School of Rural Medicine University of New England, Armidale, NSW,
Trevor Parmenter (PhD) held the Foundation Chair of Developmental Disability in the Sydney Medical School, University of Sydney, from its inception in 1997 and Director of the Centre for Disability Studies until his retirement in 2009. He is currently Professor Emeritus in the Sydney Medical School and Honorary Professor in the Faculties of Education and Social Work and Health Sciences at the University of Sydney; and Adjunct Professor in the School of Rural Medicine, University of New England. Former positions include Professorial Fellow and Director of the Unit for Community Integration Studies at Macquarie University. He is a Past President of the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD), and is the Honorary Chair of the 15th IASSIDD World Congress.