The Role of Non-Profits in Shaping Civil Rights: Understanding of Disability in Families of Children with Autism

Main Article Content

Dana Lee Baker
Leal Keiser

Keywords

Autism, nonprofits, families

Abstract

Challenges associated with disability are increasingly linked to civil rights oriented policy solutions. Nevertheless, public policy theory suggests that issue definition includes competitive promotion of preferred linkages of problem definitions to policy solutions among stakeholders. In this article, we use the case of autism to examine the role of nonprofits in shaping understandings of disability.

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References

Baumgartner, F. R., & Jones, B. D. (1993). Agendas and instability in American politics. Chicago:
University of Chicago Press.

Bryson, S. E., Rogers, S. J., & Fombonne, E. (2003). Autism spectrum disorders: Early detection,
intervention, education and psychopharmacological management. Canadian Journal of Psychiatry, 48(8), 506-516.

Dowding, K., & Van Hess, M. (2003). The construction of rights. American Political Science Review,
97(2), 281-292.

Feinberg, E., & Vacca, J. (2000). The drama and trauma of creating policies on autism: Critical issues to
consider in the new millennium. Focus on Autism and Other Developmental Disabilities, 15(3), 130-137.

Freeman, J. (1975). Politics of women’s liberation. United Kingdom: Longman Group.

Hinton, C. A. (2003). The perception of people with disabilities as to the effectiveness of the Americans with Disabilities Act. Journal of Disability Policy Studies, 13(4), 210-220.

Hooks, B. (1981). Ain’t I a woman: Black women and feminism. Boston, MA: South End Press.

Kohler, F. W. (1999). Examining the services received by young children with autism and their families:
A survey of parent responses. Focus on Autism and Other Developmental Disabilities, 14, 150-
158.

Li, L., Ford, J. A., & Moore, D. (2000). An exploratory study of violence, substance abuse, disability and
gender. Social Behavior & Personality: An International Journal, 28(1), 61-71.

Lieberman, R. C. (2002). Ideas, institutions, and political order: Explaining political change. American
Political Science Review, 96(4), 697-712.

Little, L. (2001). Middle-Class mother’s perceptions of peer and sibling victimization among children
with Asperger’s syndrome and nonverbal learning disabilities. Issues in Comprehensive Pediatric
Nursing, 25, 43-57.

Milbrath, W., & Goel, M. L. (1977). Political participation: How and why do people get involved in
politics? (2nd ed.). Chicago: Rand McNally College Publications.

Nelson, B. J. (1984). Making an issue of child abuse: Political agenda setting for social problems.
Chicago: University of Chicago Press.

Newschaffer, C. J., & Curran, L. K. (2003). Autism: An emerging public health problem. Public Health
Reports. Sept-Oct, 118.

Rosenbaum, S., Markus, A., & Darnell, J. (2000). U.S. civil rights policy and access to health care by
minority Americans: Implications for a changing health system. Medical Care Research &
Review, 57(3), 236-259.

Scherer, M. (2003). Miles to go. Educational Leadership, 61(2), 5-7.

Sharp, E. B. (1994). The dilemma of drug policy in the United States. New York: Harper Collins College
Publishers.

Sheingate, A. D. (2000). Agricultural retrenchment revisited: Issue definition and venue change in the
United States and European Union. Governance, 13(3), 335-364.

Tarry, S. E. (2001). Issue definition, conflict expansion, and tort reform: Lessons from the American
general aviation industry. Policy Studies Journal, 29(4), 571-587.

Valente, S., & Bullough, V. (2004). Sexual harassment of nurses in the workplace. Journal of Nursing
Care Quality, 19(3), 234-241.

Waldren, N. L. (1996). Child abuse and disability: The school's role in prevention and intervention.
Preventing School Failure, 40(4), 164-168.

Ward, M. J., & Meyer, R. N. (1999). Self-determination for people with developmental disabilities and
autism: Two self-advocates' perspectives. Focus on Autism & Other Developmental Disabilities,
14(3), 133-139.

Wolfinger, R. E., & Rosenston, S. J. (1980). Who votes. New Haven: Yale University Press.

Yongjoo, J., & Haider-Markel, D. P. (2001). Tracing issue definition and policy change: An analysis of
disability issue images and policy. Policy Studies Journal, 29(2), 215-231.