Navigating Uncertainty: The Family Perspective of Preparing for Crisis with a Disability
Main Article Content
Keywords
crisis preparation, disasters, disability-inclusive disaster risk reduction
Abstract
Family disaster planning and preparation demands proactive acknowledgment and accommodation of individuals with disabilities. This study, based on interviews with families including members with disabilities, uncovers insights on information gaps, adaptive strategies, technology use, and support networks. Contributing to disaster and disability studies, resilience, and crisis planning, it highlights the effect of crises on family dynamics and the crucial role of early engagement of individuals with disabilities in disaster planning.
References
Barton-Hulsey, A., Boesch, M. C., Chung, Y., Caswell, T., Sonntag, A. M., & Quach, W. (2024). Emergency and disaster preparedness for individuals who use augmentative and alternative communication: A pilot study on supported planning using a toolkit. American Journal of Speech-Language Pathology, 33(1), 16–32.
Braun, V., & Clarke, V. (2021). One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qualitative Research in Psychology, 18(3), 328–352.
Clarke, V., & Braun, V. (2013). Successful qualitative research: A practical guide for beginners.
Chadwick, D., Ågren, K. A., Caton, S., Chiner, E., Danker, J., Gómez‐Puerta, M., ... & Wallén, E. F. (2022). Digital inclusion and participation of people with intellectual disabilities during COVID‐19: A rapid review and international bricolage. Journal of Policy and Practice in Intellectual Disabilities, 19(3), 242–256.
Chang, K. Y. J., Villeneuve, M., Crawford, T., Yen, I., Dominey-Howes, D., & Llewellyn, G. (2023). Disaster preparedness, capabilities, and support needs: The lived experience perspectives of people with disability. Disabilities, 3(4), 648–665.
Crawford, T., Yen, I., Chang, K. Y. J., Llewellyn, G., Dominey-Howes, D., & Villeneuve, M. (2023). How well prepared are we for disaster? The perspectives of informal
carers of people with disability. International Journal of Disaster Risk
Reduction, 93, 103785.
Page 18
REVIEW OF DISABILITY STUDIES: AN INTERNATIONAL JOURNAL
Vol. 20 Issue 1 (2024)
Hamann, C. J., Mello, E., Wu, H., Yang, J., Waldron, D., & Ramirez, M. (2016). Disaster preparedness in rural families of children with special health care needs. Disaster Medicine and Public Health Preparedness, 10(2), 225-232.
Hipper, T. J., Davis, R., Massey, P. M., Turchi, R. M., Lubell, K. M., Pechta, L. E., ... & Chernak, E. (2018). The disaster information needs of families of children with special healthcare needs: A scoping review. Health Security, 16(3), 178–192.
Lindsay, S., & Hsu, S. (2023). Emergency and disaster preparedness among children and youth with disabilities and chronic conditions, their caregivers and service providers: A scoping review. Disability and Rehabilitation, 1-17.
Orru, K., Klaos, M., Nero, K., Gabel, F., Hansson, S., & Nævestad, T. O. (2023). Imagining and assessing future risks: A dynamic scenario‐based social vulnerability analysis framework for disaster planning and response. Journal of Contingencies and Crisis Management, 31(4), 995–1008.
Article Sidebar
Article Details
This work is licensed under a Creative Commons Attribution 4.0 International License.
RDS Journal is an open-access journal, create a free account to read full articles and to submit a proposal. For visual arts and multimedia, submission will be considered evidence that you are offering RDS the right to display your work without penalty, compensation or royalties.