Main Article Content
Early Childhood Intervention, Down syndrome, Pakistan
The paper aims to discuss the impact of Karachi Down Syndrome Program (KDSP)’s virtual Early Childhood Intervention (ECI) service, comprising of speech and language therapy, occupational therapy and physical therapy clinics, on children with Down syndrome and their parents in Pakistan during the COVID-19 pandemic from March 2020 to August 2020. The results yielded many positive outcomes of the virtual shift and allowed for continuous innovation in empowering parents and transforming the developmental outcomes of children with Down syndrome.
Ahmed, K. J., Ahmed, M., Jafri, H. S., Raashid, Y., & Ahmed, S. (2015). Pakistani mothers' and fathers' experiences and understandings of the diagnosis of Down syndrome for their child. Journal of community genetics, 6(1), 47–53. https://doi.org/10.1007/s12687-014-0200-6
Durkin, M. S., Hasan, Z. M., & Hasan, K. Z. (1995) The ten questions screen for childhood disabilities: its uses and limitations in Pakistan. Journal of Epidemiology & Community Health. 49(4):431–436. doi: 10.1136/jech.49.4.431.
Fairburn, C. G., & Patel, V. (2017). The impact of digital technology on psychological treatments and their dissemination. Behaviour research and therapy, 88, 19–25.
Feinberg, E., Silverstein, M., Donahue, S., & Bliss, R. (2011). The impact of race on participation in part C early intervention services. Journal of developmental and behavioral pediatrics: JDBP, 32(4), 284–291.
Hermes, S., Riasanow, T., Clemons, E.K., Böhm, M., & Krcmar, H. (2020). The digital transformation of the healthcare industry: exploring the rise of emerging platform ecosystems and their influence on the role of patients. Business Research. https://doi.org/10.1007/s40685-020-00125-x
Khadijah Abid, Y. A. (2020). Progress of COVID-19 Epidemic in Pakistan. Asia Pacific Journal of Public Health, 154-156.
Khan, M. A., Owais, S. S., Blacklock, C., Anil, S., Ishaq, S., Maqbool, S., Khan, H. J., Minhas, F. A., & Walley, J. (2017). Delivering integrated child development care in Pakistan: protocol for a clustered randomised trial. BJGP open, 1(1), bjgpopen17X100677. https://doi.org/10.3399/bjgpopen17X100677
Law, J., Charlton, J., & Asmussen, K. (2017). Language as a child wellbeing indicator
Mahoney, G, & Perales, F. (2006) The role of parents in early motor intervention. Down Syndrome Research and Practice, 10(2), 67-73. doi:10.3104/reviews.307
Mahoney, G., & Wiggers, B. (2007). The Role of Parents in Early Intervention: Implications for Social Work. Children & Schools, 29(1), 7–15. doi:10.1093/cs/29.1.7
Manfred, P. (2000). Early Intervention in Children with Down's Syndrome: From Evaluation to Methodology. Infants & Young Children, 12(3).
National Down Syndrome Society. (2021). Resources: Early Intervention. Retrieved from https://www.ndss.org/resources/early-intervention/
Pascal, C., Bertram, T., Cullinane, C., & Holt-White, E. (2020). COVID-19 and social mobility impact brief: early years.
Rao, P.T. (2021) A Paradigm Shift in the Delivery of Physical Therapy Services for Children with Disabilities in the Time of the COVID-19 Pandemic, Physical Therapy, 1(101).
Sayers, L.K., Cowden, J.E. & Sherrill, C. (2002). Parents' perceptions of motor interventions for infants and toddlers with Down syndrome. Adapted Physical Activity Quarterly, 19(2), 199-219.
Smees, R., and Sammons, P. (2017). What role does the home learning environment play in supporting good child development in the early years and positive outcomes in later life?
Tufail, M. (2011) Providing Quality Early Childhood Development in Pakistan Through Releasing Confidence and Creativity Program. Retrieved from https://piqc.edu.pk/early-childhood-development-in-pakistan/
UNDP. (2020). In Pakistan, pandemic could push millions more into poverty. Retrieved from https://www.undp.org/content/undp/en/home/news-centre/news/2020/Pakistan_pandemic_could_push_millions_into_poverty.html
Vicari, S. (2006) Motor development and neuropsychological patterns 447 in persons with Down syndrome, Behav Genet, 36(3), 448 355-64. doi: 10.1007/s10519-006-9057-8
Wales, D., Skinner, L., & Hayman, M. (2017). The Efficacy of Telehealth-Delivered Speech and Language Intervention for Primary School-Age Children: A Systematic Review. International journal of telerehabilitation, 9(1), 55–70.
Wilson, H., & Waddell, S. (2020). COVID-19 and early intervention: understanding the impact, preparing for recovery.