Strengths and Challenges: A Young Adult Pictures FASD Through Photovoice

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Meridith Burles
Lorraine Holtslander
Sarah Bocking
Beverley Brenna


FASD, photovoice, qualitative research


We initiated an individual case study with one young adult in Canada about everyday life with Fetal Alcohol Spectrum Disorder (FASD). Using Photovoice, we explored his experiences through photography and interviews. Findings highlight his multi-faceted identity based around ability and challenge negative stereotypes. The study supports Photovoice as a strategy to explore FASD experiences.
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Albjornslett, M., Helseth, S., & Engelsrud, G. H. (2014). ‘Being an ordinary kid’ – demands of everyday life when labelled with disability. Scandinavian Journal of Disability Research 16(4), 364-376.

Badry, D., & Wight Felske, A. (2103). An exploratory study on the use of Photovoice as a method for approaching FASD prevention in the Northwest Territories. First Peoples Child & Family Review, 8(1), 143-160.

Boblin, S. L., Ireland, S., Kirkpatrick, H., & Robertson, K. (2013). Using stake’s qualitative case study approach to explore implementation of evidence-based practice. Qualitative Health Research, 23(9), 1267–1275.

Brenna, B., Burles, M., Holtslander, L., & Bocking, S. (2017). A school curriculum for Fetal Alcohol Spectrum Disorder: Advice from a young adult with FASD. International Journal of Inclusive Education, 21(2), 218-229.

Burles, M., & Thomas, R. (2014). “I just don’t think there’s any other image that tells the story like [this] one does”: Researcher and participant reflections on the use of participant-employed photography in social research. International Journal of Qualitative Methods, 13(1), 185-205.

Chatterley-Gonzalez, A. (2010). The experiences and needs of young people with FASD: Silenced voices from youth in care. Master’s thesis, University of Manitoba, Canada.

Coleman-Fountain, E., & McLaughlin, J. (2012). The interactions of disability and impairment. Social Theory & Health, 11, 133–150.

Cook, J. L., Green, C. R., Lilley, C. M., Anderson, S. M., Baldwin, M. E., Chudley, A. E., sales, T. (2016). Fetal alcohol spectrum disorder: A guideline for diagnosis across the lifespan. CMAJ: Canadian Medical Association Journal, 188(3), 191-197.

Copeland, B. M. (2001). Searching for, finding, and experiencing friendship: A qualitative study of friendship experiences of seven young adults with Fetal Alcohol Syndrome or Fetal Alcohol Effects. Master’s thesis, University of Victoria, Canada.

Davis, L. J. (2006). The disability studies reader, 2nd edition. New York: Routledge.

Duquette, C., & Orders, S. (2013). Postsecondary educational experiences of adults with fetal alcohol spectrum disorder. International Journal of Special Education, 28(3), 68-81.

Duquette, C., Stodel, E., Fullarton, S., & Hagglund, K. (2006). Persistence in high school: Experiences of adolescents and young adults with Fetal Alcohol Spectrum Disorder. Journal of Intellectual & Developmental Disability, 31(4), 219-231.

Duquette, C., & Stodel, E. J. (2005). School experiences of students with Fetal Alcohol Spectrum Disorder. Exceptionality Education Canada, 15(2), 51-75.

FASD Support Network of Saskatchewan. (2015). Fetal Alcohol Spectrum Disorders: A guide to awareness and understanding. Saskatoon, SK: FASD Network of Saskatchewan, Inc.

Fudge Schormans, A. (2013). ‘Weightless?’: Disrupting relations of power in/through photographic imagery of persons with intellectual disabilities. Disability & Society, 29(5), 699-713.

Germov, J., & Hornosty, J. (2012). Second opinion: An introduction to health sociology, Canadian edition. Don Mills, ON: Oxford University Press Canada.

Green, C. R., Roane, J., Hewitt, A., Muhajarine, N., Mushquash, C., Sourander, A., Reynolds, J. N. (2014). Frequent behavioural challenges in children with Fetal Alcohol Spectrum Disorder: A needs-based assessment reported by caregivers and clinicians. Journal of Population Therapeutics and Clinical Pharmacology, 21(3), e405-420.

Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. New York, NY: Simon & Schuster.

Guillemin, M., & Drew, S. (2010). Questions of process in participant-generated visual methodologies. Visual Studies, 25(2), 175-88.

Hanson, J. D. & Jensen, J. (2015). Importance of social support in preventing alcohol-exposed pregnancies with American Indian communities. Journal of Community Health, 40(1), 138-146.

Hedwig, T. (2013). The cultural politics of FASDs and the diagnosis of difference. Doctoral dissertation, University of Kentucky, United States.

Jones, J. L. (2012). Factors associated with self-concept: Adolescents with intellectual and developmental disabilities share their perspectives. Intellectual and Developmental Disabilities, 50(1), 31-40.

Jurkowski, J. M. (2008.) Photovoice as participatory action research tool for engaging people with intellectual disabilities in research and program development. Intellectual and Developmental Disabilities, 46(1), 1-11.

Mason, J. (2003). Qualitative researching, 2nd edition. Sage Publications.

McLachlan, K., Roesch, R., Viljoen, J. L., & Douglas, K. S. (2014). Evaluating the psycholegal abilities of young offenders with fetal alcohol spectrum disorder. Law and Human Behavior, 38(1), 10-22.

McGregor, D. L. (2011). Never say never: Struggle and determination in the lives of young adults with FASD. PhD thesis, University of Calgary, Canada.

Merriam, S. B. (1998). Qualitative research and case study applications in education: Revised and expanded from case study research in education. San Francisco: Jossey-Bass.

Michaud, D., & Temple, V. (2013). The complexities of caring for individuals with Fetal Alcohol Spectrum Disorder: The perspective of mothers. Journal on Developmental Disabilities, 19(3), 94-101.

O’Brien, P., Sheylin, M., O’Keefe, M., Fitzgerald, S., Curtis, S., & Kenny, M. (2009). Opening up a whole new world for students with intellectual disabilities within a third level setting. British Journal of Learning Disabilities, 37(4), 285-292.

Ottmann, G., & Crosbie, J. (2013). Mixed method approaches in open-ended, qualitative, exploratory research involving people with intellectual disabilities: A comparative methods study. Journal of Intellectual Disabilities, 17(3), 182-197.

Rutman, D. (2013). Voices of women living with FASD: Perspectives on promising approaches in substance use treatment, programs and care. First Peoples Child & Family Review, 8(1), 107-121.

Rutman, D., & Van Bibber, M. (2010). Parenting with Fetal Alcohol Spectrum Disorder. International Journal of Mental Health & Addiction, 8(2), 351-361.

Ryan, S., & Ferguson, D. L. (2006). On, yet under, the radar: Students with Fetal Alcohol Syndrome Disorder. Exceptional Children, 72(3), 363-379.

Salmon, J. V. & Buetow, S. A. (2012). An exploration of the experiences and perspectives of New Zealanders with fetal alcohol spectrum disorder. Journal of Population Therapeutics and Clinical Pharmacology, 19(1), e41-50.

Shildrick, M. (2009). Dangerous discourses of disability, subjectivity and sexuality. New York: Palgrave Macmillan.

Stade, B., Beyene, J., Buller, K., Ross, S., Patterson, K., Stevens, B., Koren, G. (2011). Feeling different: The experience of living with Fetal Alcohol Spectrum Disorder. Journal of Population Therapeutics and Clinical Pharmacology, 18(3), e475-e485.

Statistics Canada. (2016). Heavy drinking, by sex, provinces and territories [Table}. In CANSIM, The Daily. Ottawa, ON: Government of Canada.
Steckley, J. (2014). Foundations of sociology. Don Mills, ON: Oxford University Press Canada.

Streissguth, A. P., Bookstein, F. L., Barr, H. M., Sampson, P. D., O'Malley, K., & Young, J. K. (2004). Risk factors for adverse life outcomes in Fetal Alcohol Syndrome and Fetal Alcohol Effects. Journal of Developmental and Behavioral Pediatrics, 25(4), 228-238.

Tait, C. L. (2007). Disruptions in nature, disruptions in society: Aboriginal peoples of Canada and the “making” of Fetal Alcohol Syndrome. In L. Kirmayer & G. Valaskakis (Eds.) The mental health of Canadian Aboriginal peoples: Transformation of identity and community (pp.196-218), Vancouver, BC: UBC Press.

Thanh, N. X., Jonsson, E., Salmon, A., & Sebastianski, M. (2014). Incidence and prevalence of Fetal Alcohol Spectrum Disorder by sex and age group in Alberta, Canada. Journal of Population Therapeutics and Clinical Pharmacology, 21(3), e395-404.

Vaughn, L. M., Rojas-Guyler, L., & Howell, B. (2008). “Picturing” health: A Photovoice pilot of Latina girls' perceptions of health. Family & Community Health, 31(4), 305-316.

Wang, C. (1999). Photovoice: A participatory action research strategy applied to women’s health. Journal of Women’s Health, 8(2), 185-92.

Wang, C., & Burris, M. A. (1997). Photovoice: Concept, methodology, and use for participatory needs assessment. Health Education & Behavior, 24(3), 369-387.

Zola, I. K. (2003). Missing pieces: A chronicle of living with a disability, 2nd edition. Philadelphia, PA: Temple University Press.