A Participatory Action Research Project with People with Disabilities and Seniors in China During the COVID-19 Pandemic
Main Article Content
Keywords
people with disabilities, participatory action research, China
Abstract
We used a participatory action research approach to examine the barriers faced by people with disabilities and seniors during the COVID-19 pandemic. Twenty-two members with lived experiences actively participated in the process of a priority mapping focus group and presented their action results at a town hall meeting.
References
References
Arya, D. (2020 Aug, 4th). India coronavirus: Helping deaf people get crucial Covid information. BBC News. https://www.bbc.com/news/av/world-asia-india-53513470
Baum, F., MacDougall, C., & Smith, D. (2006). Participatory action research. Journal of Epidemiology and Community Health, 60(10), 854.
BBC (2015, Mar 15th) 养老保险：中国公布延迟退休时间表https://www.bbc.com/zhongwen/simp/china/2015/03/150311_ana_china_retirement_age
Bengtsson, M. (2016). How to plan and perform a qualitative study using content analysis. NursingPlus Open, 2, 8-14.
Brennan, C. S. (2020). Disability Rights during the Pandemic: A Global Report on Findings of the COVID-19 Disability Rights Monitor.
https://covid-drm.org/assets/documents/Disability-Rights-During-the-Pandemic-report-web.pdf
Campbell, V. A., Gilyard, J. A., Sinclair, L., Sternberg, T., & Kailes, J. I. (2009). Preparing for and responding to pandemic influenza: Implications for people with disabilities. American Journal of Public Health, 99(S2), S294-S300.
Charlton, J. I. (2000). Nothing about us without us: Disability oppression and empowerment. University of California Press.
Graham, J., Shirm, S., Liggin, R., Aitken, M.E., & Dick, R. (2006). Mass-casualty events at schools: A national preparedness survey. Pediatrics,117, e8-e15.
Guo, C., Du, W., Hu, C., & Zheng, X. (2016). Prevalence and factors associated with healthcare service use among Chinese elderly with disabilities. Journal of Public Health, 38(3), e345-e351.
International Labour Organization (June 2020). ILO Monitor: COVID-19 and the world of work. Fifth edition: https://www.ilo.org/wcmsp5/groups/public/---dgreports/---dcomm/documents/briefingnote/wcms_749399.pdf
Jonkman S. N., Maaskant B., Boyd E., & Levitan M. L. (2009) Loss of life caused by the flooding of New Orleans after hurricane Katrina: Analysis of the relationship between flood characteristics and mortality. Risk Analysis. https://doi.org/10.1111/j.15396924.2008.01190.x
Kochhar, R., & Barroso A. (2020) Young workers likely to be hard hit as COVID-19 strikes a blow to restaurants and other service sector jobs. PEW Research Center. https://www.pewresearch.org/fact-tank/2020/03/27/young-workers-likely-to-be-hard-hit-as-covid-19-strikes-a-blow-to-restaurants-and-other-service-sector-jobs/
Lee., J. Y. (2020 Aug 5th). Digital technology has helped South Koreans cope with the pandemic. But the elderly have been left behind in the new contact-free era. BBC Worklife. https://www.bbc.com/worklife/article/20200803-south-korea-contact-free-untact-society-after-coronavirus
Li, X. & Cai, C. (2020). 重大突发公共卫生事件对残障群体的影响及人权保障 The impact of critical public health event on people with disabilities and their rights. Unpublished Manuscript.
Nelson, G., Ochocka, J., Griffin, K., & Lord, J. (1998). “Nothing about me, without me”: Participatory action research with self-help/mutual aid organizations for psychiatric consumer/survivors. American Journal of Community Psychology, 26(6), 881-912.
Polantz, K., & Kelly, C. (2020 Sep, 23rd). White House ordered to make live sign language interpretation during coronavirus briefing available to TV networks. CNN Politics. https://www.cnn.com/2020/09/23/politics/white-house-american-sign-language-interpretation/index.html
Rooney, C., & White, G. W. (2007). Consumer perspective: Narrative analysis of a disaster preparedness and emergency response survey from persons with mobility impairments. Journal of Disability Policy Studies, 17(4), 206-215.
Tate E., Strong A., Kraus T., & Xiong H. (2016) Flood recovery and property acquisition in Cedar Rapids, Iowa. Natural Hazards, 80: 2055-2079.
UNOHCHR (2020). COVID-19 and the rights of persons with disabilities: guidance. https://www.ohchr.org/Documents/Issues/Disability/COVID-19_and_The_Rights_of_Persons_with_Disabilities.pdf
US White House (2004). Executive order 13347–individuals with disabilities in emergency preparedness. National Archives and Record Administration, 69(142).
Author (2021). Details omitted for peer review purposes.
Yan A. (2020) Father whose disabled son died while he was quarantined with coronavirus just wants ‘quiet life.’ South China Morning Post. https://www.scmp.com/news/china/society/article/3050989/father-whose-disabled-son-died-while-he-was-quarantined
Zhang, X., Dupre, M. E., Qiu, L., Zhou, W., Zhao, Y., & Gu, D. (2017). Urban-rural differences in the association between access to healthcare and health outcomes among older adults in China. BMC Geriatrics, 17(1), 151
陈依柠. 重大突发公共卫生事件中中老年人风险感知——以“新冠”肺炎疫情时期的中国合肥市居民为例[J].今传媒, 2020, 28(05), 25-30.
大米和小米. 两会闭幕，湖北脑瘫少年鄢成离世后出台的救助方案写进了民法典, 2020-05-29. https://www.sohu.com/a/398426791_648590
国务院应对新型冠状病毒感染肺炎疫情 联防联控机制关于印发《因新冠肺炎 疫情影响造成监护缺失儿童救助 保护工作方案》的通知 国发明电〔2020〕11号
刘伊宁. 守望特殊“疫”线——湖北省武汉市武昌区徐家棚街道驻点社工的助残服务 [J] 中国社会工作 2020 (05)
石丹淅,王琦.残疾人就业状况变动趋势分析[J]. 残疾人研究,2013(04), 76-79.
万蓉. 新冠肺炎疫情期间老年人学习状况调研报告 [J] 中国成人教育 2020（08）
人民日报 940万残疾人就业是怎样实现的——2018-08-06: http://www.gov.cn/zhengce/2018-08/06/content_5311958.htm
Arya, D. (2020 Aug, 4th). India coronavirus: Helping deaf people get crucial Covid information. BBC News. https://www.bbc.com/news/av/world-asia-india-53513470
Baum, F., MacDougall, C., & Smith, D. (2006). Participatory action research. Journal of Epidemiology and Community Health, 60(10), 854.
BBC (2015, Mar 15th) 养老保险：中国公布延迟退休时间表https://www.bbc.com/zhongwen/simp/china/2015/03/150311_ana_china_retirement_age
Bengtsson, M. (2016). How to plan and perform a qualitative study using content analysis. NursingPlus Open, 2, 8-14.
Brennan, C. S. (2020). Disability Rights during the Pandemic: A Global Report on Findings of the COVID-19 Disability Rights Monitor.
https://covid-drm.org/assets/documents/Disability-Rights-During-the-Pandemic-report-web.pdf
Campbell, V. A., Gilyard, J. A., Sinclair, L., Sternberg, T., & Kailes, J. I. (2009). Preparing for and responding to pandemic influenza: Implications for people with disabilities. American Journal of Public Health, 99(S2), S294-S300.
Charlton, J. I. (2000). Nothing about us without us: Disability oppression and empowerment. University of California Press.
Graham, J., Shirm, S., Liggin, R., Aitken, M.E., & Dick, R. (2006). Mass-casualty events at schools: A national preparedness survey. Pediatrics,117, e8-e15.
Guo, C., Du, W., Hu, C., & Zheng, X. (2016). Prevalence and factors associated with healthcare service use among Chinese elderly with disabilities. Journal of Public Health, 38(3), e345-e351.
International Labour Organization (June 2020). ILO Monitor: COVID-19 and the world of work. Fifth edition: https://www.ilo.org/wcmsp5/groups/public/---dgreports/---dcomm/documents/briefingnote/wcms_749399.pdf
Jonkman S. N., Maaskant B., Boyd E., & Levitan M. L. (2009) Loss of life caused by the flooding of New Orleans after hurricane Katrina: Analysis of the relationship between flood characteristics and mortality. Risk Analysis. https://doi.org/10.1111/j.15396924.2008.01190.x
Kochhar, R., & Barroso A. (2020) Young workers likely to be hard hit as COVID-19 strikes a blow to restaurants and other service sector jobs. PEW Research Center. https://www.pewresearch.org/fact-tank/2020/03/27/young-workers-likely-to-be-hard-hit-as-covid-19-strikes-a-blow-to-restaurants-and-other-service-sector-jobs/
Lee., J. Y. (2020 Aug 5th). Digital technology has helped South Koreans cope with the pandemic. But the elderly have been left behind in the new contact-free era. BBC Worklife. https://www.bbc.com/worklife/article/20200803-south-korea-contact-free-untact-society-after-coronavirus
Li, X. & Cai, C. (2020). 重大突发公共卫生事件对残障群体的影响及人权保障 The impact of critical public health event on people with disabilities and their rights. Unpublished Manuscript.
Nelson, G., Ochocka, J., Griffin, K., & Lord, J. (1998). “Nothing about me, without me”: Participatory action research with self-help/mutual aid organizations for psychiatric consumer/survivors. American Journal of Community Psychology, 26(6), 881-912.
Polantz, K., & Kelly, C. (2020 Sep, 23rd). White House ordered to make live sign language interpretation during coronavirus briefing available to TV networks. CNN Politics. https://www.cnn.com/2020/09/23/politics/white-house-american-sign-language-interpretation/index.html
Rooney, C., & White, G. W. (2007). Consumer perspective: Narrative analysis of a disaster preparedness and emergency response survey from persons with mobility impairments. Journal of Disability Policy Studies, 17(4), 206-215.
Tate E., Strong A., Kraus T., & Xiong H. (2016) Flood recovery and property acquisition in Cedar Rapids, Iowa. Natural Hazards, 80: 2055-2079.
UNOHCHR (2020). COVID-19 and the rights of persons with disabilities: guidance. https://www.ohchr.org/Documents/Issues/Disability/COVID-19_and_The_Rights_of_Persons_with_Disabilities.pdf
US White House (2004). Executive order 13347–individuals with disabilities in emergency preparedness. National Archives and Record Administration, 69(142).
Author (2021). Details omitted for peer review purposes.
Yan A. (2020) Father whose disabled son died while he was quarantined with coronavirus just wants ‘quiet life.’ South China Morning Post. https://www.scmp.com/news/china/society/article/3050989/father-whose-disabled-son-died-while-he-was-quarantined
Zhang, X., Dupre, M. E., Qiu, L., Zhou, W., Zhao, Y., & Gu, D. (2017). Urban-rural differences in the association between access to healthcare and health outcomes among older adults in China. BMC Geriatrics, 17(1), 151
陈依柠. 重大突发公共卫生事件中中老年人风险感知——以“新冠”肺炎疫情时期的中国合肥市居民为例[J].今传媒, 2020, 28(05), 25-30.
大米和小米. 两会闭幕，湖北脑瘫少年鄢成离世后出台的救助方案写进了民法典, 2020-05-29. https://www.sohu.com/a/398426791_648590
国务院应对新型冠状病毒感染肺炎疫情 联防联控机制关于印发《因新冠肺炎 疫情影响造成监护缺失儿童救助 保护工作方案》的通知 国发明电〔2020〕11号
刘伊宁. 守望特殊“疫”线——湖北省武汉市武昌区徐家棚街道驻点社工的助残服务 [J] 中国社会工作 2020 (05)
石丹淅,王琦.残疾人就业状况变动趋势分析[J]. 残疾人研究,2013(04), 76-79.
万蓉. 新冠肺炎疫情期间老年人学习状况调研报告 [J] 中国成人教育 2020（08）
人民日报 940万残疾人就业是怎样实现的——2018-08-06: http://www.gov.cn/zhengce/2018-08/06/content_5311958.htm
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Published
Jan 20, 2024
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Research Articles and Essays
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Author Biographies
Yue Xu, University of Illinois College of Medicine Rockford
Yue Xu, PhD, MSW, is a clinical assistant professor and the health disparity course director at the University of Illinois College of Medicine Rockford.
Luanjiao Hu, The Lurie Institute for Disability Policy, Brandeis University
Luanjiao Hu, PhD, is a postdoctoral research associate at Lurie Institute for Disability Policy, Brandeis University.
Chengqing Shen, Minority Voice
Chengqing Shen is a self-advocate with multiple disabilities and executive director of Minority Voice.
Jiani Guo, Minority Voice
Jiani Guo is a self-advocate with a rare disease and the former media editor of Minority Voice.