“Nothing About Us Without Us”: Involving People with Dementia in Qualitative Research

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Margaret Oldfield


dementia, disability, research participants


People with dementia are increasingly asserting their rights as people with disabilities. Yet instead of inviting these people as participants, researchers of dementia often use surrogates—family members or healthcare professionals. I address this problem by bringing together qualitative methodologies that involve people with dementia directly in research. 

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